Blog Archives
My Kid Uses Chopsticks Better Than I Do
Seriously. My father used to tell me that the true test of someone’s ability to use chopsticks was being able to pick up peanuts with them. I wonder what he would think of my not quite three year old picking up Goldfish? See below for pictures. Read the rest of this entry
Keeping Perspective: Flight, Fright or Fight
For you news junkies out there, you may have heard about the 180-lb tumor that was removed from a 32-year-old Vietnamese man, Nguyen Duy Hai, in Ho Chi Minh City. If you saw it, you probably had an “oh my god,” “gross,” “wow that’s incredible” or a “can you imagine?” moment. I’ve had those moments too. I’m embarrassed to admit that I’ve also had the “I’m so glad it isn’t me” reaction. I think all these reactions are perfectly normal. It’s one way that we remind ourselves that despite all our complaints, there are still many, many people who have it worse than we do in some way, shape or form.
But for me, this story was an unpleasant reminder of what could happen to my little girl. Just six short weeks ago, I talked about the struggle for calm in the face of my daughter’s neurofibromatosis (NF type 1). Because it turns out that this Vietnamese man also has NF1.
NF? What NF?
A couple weeks ago, I talked a bit about the NF Symposium I attended a few weekends ago and how I was struck by the conflicting agendas of the program participants. That was the cerebral side of things. In this post, I’ll be talking about the emotional aspects.
Sideshow Act: She can sing! She can read!
Right this way, ladies and gentlemen! It’s the one, the only, the amazing, singing, dancing and reading K!
Sometimes I feel like a carnival barker when I post pictures and videos about my kid. I mean, how irritating must it be to everyone else besides my family? And let’s face it – nearly every parent thinks their kid rocks. It’s genetically engrained in us so we don’t, you know, eat our young or sacrifice them to the minotaur or whatever. It’s kind of like how no parent of a six-month old can accurately explain what it’s like to be the parent of a newborn. It’s only been half a year, but nature has a way of fuzzing it all out so that you won’t convince yourself or others around you NEVER TO PROCREATE AGAIN. And I say that as the mother of a kid who was really pretty easy at that age (I think. But really, given what I just said, can you trust me?) Read the rest of this entry
Imagining a World “Full of Awesome”
“Awesome” is one of my favorite words to use with K. It’s my little way of telling her that what she is doing or has just done is something to be admired. I use it frequently – to encourage her to do things “by myself, Mama!”, to try things she’s scared of (“Getting to pet Jay’s cat Bailey is awesome, isn’t it, K?”), to keep her from crying on the playground because she slid down a little too fast on the slide and scared herself (“Oh my goodness, that was awesome, K! Let’s try it again!”). I use it so much that Kwill often use it too, telling me in her ever so serious voice: “Tha’s awesome, Mumma, tha’s awesome.” Read the rest of this entry





